In addition to the routine recommendations for preventative pediatric health care that all kids need, there are some extra things that kids with special needs should get at their well child check ups.
There might also be extra things that need to be done for kids who have been diagnosed with various chronic conditions, from cystic fibrosis and diabetes to immunodeficiency syndromes and tuberous sclerosis.
Health Supervision Guidelines for Children With Extra and Special Needs
Being aware of and following these guidelines can help to make sure these kids get all of the screening tests, referrals to specialists, and other things that are necessary to keep them safe and healthy.
- Health Supervision for Children With Achondroplasia (AAP)
- Alport Syndrome
- Identification, Evaluation, and Management of Children With Autism Spectrum Disorder (AAP)
- Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy (AAP)
- The Care of Children With Congenital Heart Disease in Their Primary Medical Home (AAP)
- Cystic Fibrosis Age-Specific Care Guidelines
- CHARGE syndrome
- Type 1 Diabetes in Children and Adolescents: A Position Statement by the American Diabetes Association
- Health Supervision for Children With Down Syndrome (AAP)
- Cardiovascular Health Supervision for Individuals Affected by Duchenne or Becker Muscular Dystrophy (AAP)
- Specialty Care for the Patient With Duchenne Muscular Dystrophy (AAP)
- Caring for Someone with Ehlers-Danlos syndromes (EDS) or HSD
- Health Supervision for Children With Fragile X Syndrome (AAP)
- Guidelines for the Management of Hemophilia
- Newborn Screening and Therapy for Congenital Hypothyroidism (AAP)
- European Consensus Statement on congenital hypogonadotropic hypogonadism—pathogenesis, diagnosis and treatment – Kallmann syndrome
- Update on Klinefelter Syndrome: Diagnosis and Management
- Health Supervision for Children With Marfan Syndrome (AAP)
- Health Supervision for Children With Neurofibromatosis Type 1 (AAP)
- PKU Medical Guidelines
- Mangement of POTS
- Health Supervision for Children With Prader-Willi Syndrome (AAP)
- Infants and Children Living with Primary Immunodeficiency
- Teens Living with Primary Immunodeficiency
- The “Classic” RASopathy Syndromes
- Health Supervision for Children With Sickle Cell Disease (AAP)
- Diagnosis, Surveillance, and Management of Tuberous Sclerosis
- Health Supervision for Children With Turner Syndrome (AAP)
- Health Care Supervision for Children With Williams Syndrome (AAP)
There are also AAP guidelines to help pediatric providers care for children in other special situations:
- Providing Care for Children in Immigrant Families
- Fetal Alcohol Spectrum Disorders
- Collaborative Role of the Pediatrician in the Diagnosis and Management of Bipolar Disorder in Adolescents
- Providing Care for Infants Born at Home
- Hospital Discharge of the High-Risk Neonate
- “Late-Preterm” Infants: A Population at Risk
- Health Care Issues for Children and Adolescents in Foster Care and Kinship Care
- Comprehensive Health Evaluation of the Newly Adopted Child
- Health Care for Youth in the Juvenile Justice System
Guidelines that help pediatric providers care for all of their kids, no matter their needs.
More on Health Supervision Guidelines for Children
- Vaccines in Special Situations
- Vaccines for Kids with Asplenia
- Vaccine Schedule for Children with Down Syndrome
- 30 Uncommon Diseases Parents Should Learn to Recognize
- 5 Rare Syndromes That Parents Should Learn About
- Promoting Health for Children and Youth With Special Health Care Needs
- AAP – Recommendations for Preventive Pediatric Health Care
- AAP – Role of the School Nurse in Providing School Health Services
- AAP – Transporting Children With Special Health Care Needs
- AAP –Guidance on Forgoing Life-Sustaining Medical Treatment
- Guidelines for the Diagnosis and Management of Food Allergy in the United States
- Guidelines from the National Asthma Education and Prevention Program
- AAP – Children With Intellectual and Developmental Disabilities as Organ Transplantation Recipients
- AAP – Comprehensive Evaluation of the Child With Intellectual Disability or Global Developmental Delays
- AAP – Clinical Practice Guideline for the Diagnosis, Evaluation, and Treatment of Attention-Deficit/Hyperactivity Disorder in Children and Adolescents
- CDC – Childhood Obesity Healthcare
- Prevention of Rheumatic Fever and Diagnosis and Treatment of Acute Streptococcal Pharyngitis
- HIV and Children and Adolescents
- Kidney Disease in Children
- The Significance of Down Syndrome Health Care Guidelines
- AAP – Ensuring Comprehensive Care and Support for Transgender and Gender-Diverse Children and Adolescents
- AAP – Unique Needs of the Adolescent
- Rare Disease Information
Last Updated on November 9, 2020 by Vincent Iannelli, MD
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